Sunday, 17 July 2016

News from the Cymru ALN team - July 2016.

Gear up to talk to AMs as soon as Bill is published, suggest amendments, watch out for delay to code.  How the ALN Bill becomes law here.

Ministers Statement:- Next Draft of the ALN Bill expected before Xmas.

Our group is currently discussing what we see as being the key priorities for the next 12 months in order to respond to the current consultation by the deadline of September 9th 2016. Do join us!

New Health related WAG consultation now openWelsh Language Standards – Improving services for Welsh speakers within the health sector. End of consultation:14/10/2016 

The Campaign for the Children and Young People Assembly for Wales (Funky Dragon)

The Campaign for the Children and Young People Assembly for Wales are calling on everyone aged 11 – 25 in Wales, and all those who care about them, to take part in their consultation on what a new youth assembly for Wales should look like. The consultation is running between the 15th June and the 15th September.

This is a real opportunity for our children to have a voice, so let's not waste it!

ESTYN - report on EOTAS - our summary of the salient points, and the link to the original report here

Useful sources of help 

Dyslexia Gold Learning outside of school continues all year round, so we have a NEW fantastic offer for our children who need help with visual tracking as part of their dyslexia programme. Please see our facebook group for details of how to obtain the Home Education discount for "From struggling reader to fluent in 10 minutes a day". 

Calvert Trust The Calvert Trust enables people with disabilities, together with their families and friends, to achieve their potential through the challenge of outdoor adventure in the countryside. We aim to do this by providing: A wide range of adventurous outdoor activities, meaningful challenge and adventure within a framework of safety Skilled, qualified and caring staff able to fulfil the needs of visitors Accommodation appropriate to the needs of the visitors Facilities for families and friends to share the enjoyment and experience

Disability Sports Wales Disability Sport Wales are committed to providing a range of activities as close to your doorstep as possible in an environment that is just right for you.  Whether you want to participate or compete in non disabled or disability specific clubs /sessions we can help you find the perfect opportunity. Use our search options to find the right sports for you all across Wales.

Sense Cymru TouchBase Wales provides a range of services across Wales for deafblind people and their families.While the main focus of our work is with people who have a dual sensory loss – a loss of sight and hearing at a level where people are experiencing difficulties with mobility, accessing information and communication - we also work with individuals who have a single sensory loss and other disabilities.

Boparan Charitable Trust UK based National Children’s charity, which helps those with disabilities, life-limiting conditions or are in extreme poverty.

The Sequal Trust, a small national fundraising Charity, founded in 1968, which is committed to bridging the communication gap for disabled people of all ages throughout the UK. It is  their aim to help each of our disabled members to reach their full potential through the provision of suitable communication equipment. To help people to see the person and not the disability, and to provide the means to set lively minds free, continues to be our prime objectives. SEQUAL stands for Special Equipment and Aids for Living.

We were asked about help with continence issues -
ERIC education and resources or improving childhood continence is a national charity that supports children with continence problems and campaigns for better childhood continence care  The leaflets are free to download
PromoCon have a team of dedicated experts who can provide advice and support to help manage any kind of incontinence, bladder or bowel related issue. Our helpline is accessible to patients, health care professionals and anyone who requires further information or support.  Our aim is to raise awareness of continence from a national perspective, whilst supporting patients and professionals to improve the quality of life for sufferers of bladder and bowel problems. We can help with information about services, practical solutions and product advice in a friendly a personal manner. We are a part of the wider organisation  Disabled Living and offer our support throughout the country.  We have a range of literature that will help parent, carers, health care professionals and schools cope with incontinence in children and young people. Our Children`s Specialist Continence Advisors can provide support, advice and information. If you wish to speak to them, contact our helpline on telephone number: 0161 607 8219 You can leave a message on our voice mail if no one is available to take your call. Please leave your name and contact information and we will return your call as soon as we can, although this may not be the same day.

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